A few months ago, Dr. Narayanan asked us if we would share our story with TGen as they launched a new foundation called Center for Rare Childhood Disorders. http://www.c4rcd.org TGen is the company that is studying our family's genome searching for the mutated genes causing Mitochondrial Disease.
We said we would love to help in any way possible. In November, our family traveled again to Phoenix to be interviewed and photographed. We spent the afternoon touring the company, doing the interview, and getting our pictures taken.
The article was published recently in TGen Today. I have grown to love this company! It has taken the data from the Human Genome Project and applied it to saving lives. I encourage anyone to take a look at this remarkable company. I have decided to post the article on my blog.