The Evolution of My Blog

On April 22, 2011, this introvert entered the blogging world to chronicle a day in the life as a father with children that have a chronic incurable disease called mitochondrial disease.  As a novice blogger, I was clueless and my expectations were low.  I found that telling my story was therapeutic for me.  Since then, I have discovered that my blog has not only been therapeutic for me, but for others too who suffer.  It has been educational for many who are on a similar diagnostic odyssey.  Now, the goal of this blog is to be a source of hope, education, and solace for those who have rare diseases.

Seth is now able to write letters.  He made name tags for us on post it stickies

On my second post, I wrote: "It's easy to write a blog when you know that you are the only one reading it."  Since my silent and bashful entry into the blogging world, this blog has turned into something that I never expected.  Each month, the number of pageviews continue to increase.  Now, on average, there are 1300 - 1600 pageviews each month.  

Seth getting his annual cardiology checkup.  Heart is stable.

I do not say this to boast or to boost my ego.  I report these statistics because it tells me that mitochondrial disease is getting more awareness.  People are learning about this disease.  It tells me that I can make a difference, but I could not have done this without you!  I continue to need you.  I ask you to subscribe to my blog, share it with your friends by email or social media.  September 15th - 21st is Mitochondrial Disease Awareness week.  I've always believed that awareness is the first step in finding a cure.  In the words of my little boy Seth in the video we recently posted:  "Help us find a cure!"  Thank you!!!

 

Me and Seth sporting our new glasses.  He insisted our glasses be the same.

#mitochondrialdisease #mitodisease

Video of Seth being Seth. Help us find a cure.

Help us find a cure starring Seth.  Seth and I made this video for Mitochondrial Disease Awareness week which is September 15th - 21st.  Awareness is the first step in finding a cure.  Feel free to share this video and help us raise awareness.