On April 22, 2011, this introvert entered the blogging world to chronicle a day in the life as a father with children that have a chronic incurable disease called mitochondrial disease. As a novice blogger, I was clueless and my expectations were low. I found that telling my story was therapeutic for me. Since then, I have discovered that my blog has not only been therapeutic for me, but for others too who suffer. It has been educational for many who are on a similar diagnostic odyssey. Now, the goal of this blog is to be a source of hope, education, and solace for those who have rare diseases.
|Seth is now able to write letters. He made name tags for us on post it stickies|
|Seth getting his annual cardiology checkup. Heart is stable.|
|Me and Seth sporting our new glasses. He insisted our glasses be the same.|