Tuesday, November 27, 2012

Our Mitochondrial Disease Journey (video)

Becky and I have sent this video link to many of our family and friends.  I am an introvert, so sending things out like I've done and writing this blog is atypical for me.  It's amazing what you will do when three of your four children have a disease that is incurable and has poor treatment options.  We are their advocates!


Also, we sent this out to try and gain support for the Arizona Mito Walk which is being held in Phoenix, AZ on December 15, 2012.  www.azmitowalk.com



4 comments:

  1. Amazing video and incredible family. Love you guys!!!

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  2. I just donated to AZMitowalk.org! In support of Team Belnap Mito Warriors! Thank you for sharing this.

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  3. Newel and Becky, my heart goes out to your family. Your video brought tears to my eyes. Amy had told me a little about your family in the past, but I didn't realize the severity of the condition. You are so strong. Thanks for sharing your story. I hope you raise a lot of money for the cure. I did post the video on my facebook wall.

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  4. Advocating for your children always stretches and rewards you... looking forward to the walk!

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